Disorder called P.A.N.S (aka P.A.N.D.A.S.)

by K.henrikson
(Ontario)

Hi, My son was diagnosed with Obsessive compulsive Disorder, Generalized Anxiety Disorder, and Sensory Procession Disorder a year ago.


This year he was diagnosed with P.A.N.S. (Pediatric Acute-onset neuro-psychiatric syndrome) which is what causes his OCD and anxiety among many other symptoms (ADHD, urinary issues, paranoia, separation anxiety, loss of fine motor skills, brain fog, confusion etc etc it goes on an on) that come and go in relation to illness and exposure to illness.

It took a year of travelling to many doctors, an expensive trial of intense ibuprofen use (to reduce inflammation in his brain) and to paying for the medications and many supplements his current doctor wants him to take.

We do not have to money to keep up with the supplements and wondered if there was anything available and appropriate for us in the way of grants.

There are also tests available in the United States that would be extremely beneficial to have to treat his condition which are expensive and we cannot have them done in Canada.

To that end there are also other treatments like IVIG that is prescribed and regulated for treatment there but is not here...and is of course astronomically expensive....

Any tips would be greatly appreciated! Especially since it is likely we will be treating our two daughters for this condition in the near future too.

Comments for Disorder called P.A.N.S (aka P.A.N.D.A.S.)

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Apr 12, 2016
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Autism/PANDAS
by: Anonymous

HI

We have a son with Autism and suspected PANDAS. We live in Alberta and would love to connect with other Canadian families with a diagnosis of PANDAS. My email is duttamou@hotmail.com. It is definitely not an easy journey :(

Oct 30, 2015
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by: Anonymous

Hi to luvourgirl@hotmail.com
We have a son with Tourette and run a local support group in south western Ontario. Would love to connect
Jennie

Nov 17, 2013
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Hi from Ontario
by: Anonymous

I live in ontario too and my daughter was just diagnosed with Tourette's but a friend made me aware of Pandas and we had her tested for strep and came back positive as of yesterday. We are starting our search of what to do next. Please email me and we can share our experiences and try to get Canada to listen. luvourgirl@hotmail.com thanks

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